000			01967 am a22002293u 4500
042			_adc
100	1	0	_aWashington, Karla T. _eauthor _9802
700	1	0	_aKukulka, Klaudia _eauthor _9803
700	1	0	_aGovindarjan, Raghav _eauthor _9804
700	1	0	_aMehr, David R. _eauthor _9805
245	0	0	_aEngaging Specialist Palliative Care in the Management of Amyotrophic Lateral Sclerosis: A Patient, Family, and Provider-Based Approach
260			_c2022-04.
500			_a/pmc/articles/PMC7429241/
500			_a/pubmed/32066316
520			_aPURPOSE: To describe key stakeholders' perspectives on specialist palliative care and its integration into the management of amyotrophic lateral sclerosis (ALS). METHODS: Qualitative, non-interventional, descriptive study. Data collected via individual interviews of 42 stakeholders (n = 14 patients, n = 16 family caregivers, n = 12 healthcare providers). Transcribed interviews were analyzed using inductive thematic analysis techniques. RESULTS: Stakeholders' general impressions of specialist palliative care were highly variable. Many expressed limited or inaccurate understandings of palliative care's definition and purpose. Perceptions of palliative care as hospice were common. Stakeholders generally supported the integration of specialist palliative care into ALS management, and many recognized the value of early integration of palliative services in both the community and the clinic setting. CONCLUSION: Key stakeholders readily identify a meaningful role for specialist palliative care in ALS management. Integration of specialist palliative care into existing systems of support would be facilitated by a more comprehensive understanding of the service among patients, family caregivers, and healthcare providers.
540			_a
546			_aen
690			_aArticle
655	7		_aText _2local
786	0		_nJ Palliat Care
856	4	1	_uhttp://dx.doi.org/10.1177/0825859719895827 _zConnect to this object online.
999			_c218 _d218