000 02962 am a22002773u 4500
042 _adc
100 1 0 _aBanerjee, Smita C.
_eauthor
_9916
700 1 0 _aCamacho-Rivera, Marlene
_eauthor
_9917
700 1 0 _aHaque, Noshin
_eauthor
_9918
700 1 0 _aFlynn, Lisa
_eauthor
_9919
700 1 0 _aThomas, John
_eauthor
_9920
700 1 0 _aSmith, Philip
_eauthor
_9921
700 1 0 _aSheffer, Christine
_eauthor
_9922
700 1 0 _aOstroff, Jamie S.
_eauthor
_9923
245 0 0 _aUnderstanding Cognitive and Emotional Illness Representations of South Asian Head and Neck Cancer Survivors: A Qualitative Study
260 _c2022-01.
500 _a/pmc/articles/PMC7524586/
500 _a/pubmed/31448959
520 _aOBJECTIVES: Head and neck cancer (HNC) constitutes a substantial portion of the cancer burden worldwide, with over 550,000 new cases and over 300,000 deaths annually, with disproportionately high mortality rates in the developing countries. The large majority of HNCs are caused by tobacco use, and synergistic effects of tobacco and alcohol use. Using the Common-Sense Model (CSM) as a framework, this qualitative study sought to understand South Asian HNC survivors' cognitive and emotional representations of their cancer; and to assess if these representations differ by smokeless tobacco (SLT) vs. smoked tobacco use. DESIGN: In-depth semi-structured interviews, conducted with South Asian HNC survivors (N = 15, 80% participants were immigrants, while 20% came to United States for treatment) to identify key themes and issues related to HNC experience and SLT vs. smoked tobacco use. RESULTS: The results of the study provide a deeper understanding of South Asian HNC survivor experiences with receiving a HNC diagnosis, delays in seeking treatment and related medical care, disagreement regarding smoked tobacco/SLT history as potential causes of cancer, strategies to cure the cancer or prevent recurrence, enduring physical and psycho-social consequences of treatment, and emotional impact of the cancer experience. Three key implications emerged: (a) the utility of narratives as a method of eliciting HNC survivor experience to understand patient experiences and concerns; (b) the potential for public health practitioners to harness patients' voices and the power of storytelling for developing campaigns about public awareness of SLT use, providing information and support to SLT users, and encouraging SLT quitting resources; and (c) the importance of providing clear, personalized and culturally sensitive education regarding the risks of SLT use. CONCLUSIONS: This study underscores the significance of offering tailored tobacco cessation services to South Asian HNC survivors, and to help inform supportive models of care for others.
540 _a
546 _aen
690 _aArticle
655 7 _aText
_2local
786 0 _nEthn Health
856 4 1 _uhttp://dx.doi.org/10.1080/13557858.2019.1625872
_zConnect to this object online.
999 _c1599
_d1599