000			01825 am a22002413u 4500
042			_adc
100	1	0	_aNageswaran, Savithri _eauthor _91005
700	1	0	_aBanks, Quincy _eauthor _91006
700	1	0	_aGolden, Shannon L. _eauthor _91007
700	1	0	_aGower, W. Adam _eauthor _91008
700	1	0	_aKing, Nancy M.P. _eauthor _91009
245	0	0	_aThe Role of Religion and Spirituality in Caregiver Decision-Making about Tracheostomy for Children with Medical Complexity
260			_c2022.
500			_a/pmc/articles/PMC7577925/
500			_a/pubmed/32319863
520			_aChildren with medical complexity (CMC) receive life-sustaining treatments such as tracheostomy. The objective of this paper is to explore the roles of religion and spirituality (R&S) of caregivers of children with medical complexity (CMC) in their decision to pursue tracheostomy for their children. We conducted 41 in-depth interviews of caregivers of CMC who had received tracheostomies in the prior five years. Four themes emerged: 1) Caregivers believed R&S to be powerful for their children's healing, and helped them cope with their children's illnesses; 2) Spirituality was an important factor for caregivers in the decision to pursue tracheostomy for their children; 3) Many caregivers did not discuss their spirituality with clinicians for a variety of reasons; 4) Clergy and hospital chaplains played a major supportive role overall; however, they did not play a significant role in the decision-making process. Our study shows the importance of R&S, and the roles of clergy and chaplains in pediatric tracheostomy decision-making.
540			_a
546			_aen
690			_aArticle
655	7		_aText _2local
786	0		_nJ Health Care Chaplain
856	4	1	_uhttp://dx.doi.org/10.1080/08854726.2020.1755812 _zConnect to this object online.
999			_c1514 _d1514