TY  - BOOK
AU  - Nageswaran,Savithri
AU  - Banks,Quincy
AU  - Golden,Shannon L.
AU  - Gower,W.Adam
AU  - King,Nancy M.P.
TI  - The Role of Religion and Spirituality in Caregiver Decision-Making about Tracheostomy for Children with Medical Complexity
PY  - 2022///
KW  - Text
KW  - local
N1  - /pmc/articles/PMC7577925; /pubmed/32319863
N2  - Children with medical complexity (CMC) receive life-sustaining treatments such as tracheostomy. The objective of this paper is to explore the roles of religion and spirituality (R&S) of caregivers of children with medical complexity (CMC) in their decision to pursue tracheostomy for their children. We conducted 41 in-depth interviews of caregivers of CMC who had received tracheostomies in the prior five years. Four themes emerged: 1) Caregivers believed R&S to be powerful for their children's healing, and helped them cope with their children's illnesses; 2) Spirituality was an important factor for caregivers in the decision to pursue tracheostomy for their children; 3) Many caregivers did not discuss their spirituality with clinicians for a variety of reasons; 4) Clergy and hospital chaplains played a major supportive role overall; however, they did not play a significant role in the decision-making process. Our study shows the importance of R&S, and the roles of clergy and chaplains in pediatric tracheostomy decision-making
UR  - http://dx.doi.org/10.1080/08854726.2020.1755812
ER  -