JOM KITA KE POLITEKNIK

Engaging Specialist Palliative Care in the Management of Amyotrophic Lateral Sclerosis: A Patient, Family, and Provider-Based Approach (Record no. 218)

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Personal name Washington, Karla T.
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9 (RLIN) 802
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Title Engaging Specialist Palliative Care in the Management of Amyotrophic Lateral Sclerosis: A Patient, Family, and Provider-Based Approach
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Date of publication, distribution, etc. 2022-04.
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General note /pmc/articles/PMC7429241/
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General note /pubmed/32066316
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Summary, etc. PURPOSE: To describe key stakeholders' perspectives on specialist palliative care and its integration into the management of amyotrophic lateral sclerosis (ALS). METHODS: Qualitative, non-interventional, descriptive study. Data collected via individual interviews of 42 stakeholders (n = 14 patients, n = 16 family caregivers, n = 12 healthcare providers). Transcribed interviews were analyzed using inductive thematic analysis techniques. RESULTS: Stakeholders' general impressions of specialist palliative care were highly variable. Many expressed limited or inaccurate understandings of palliative care's definition and purpose. Perceptions of palliative care as hospice were common. Stakeholders generally supported the integration of specialist palliative care into ALS management, and many recognized the value of early integration of palliative services in both the community and the clinic setting. CONCLUSION: Key stakeholders readily identify a meaningful role for specialist palliative care in ALS management. Integration of specialist palliative care into existing systems of support would be facilitated by a more comprehensive understanding of the service among patients, family caregivers, and healthcare providers.
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Language note en
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Topical term or geographic name as entry element Article
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Personal name Kukulka, Klaudia
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9 (RLIN) 803
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Personal name Govindarjan, Raghav
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Personal name Mehr, David R.
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9 (RLIN) 805
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Note J Palliat Care
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Uniform Resource Identifier <a href="http://dx.doi.org/10.1177/0825859719895827">http://dx.doi.org/10.1177/0825859719895827</a>
Public note Connect to this object online.
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Withdrawn status Lost status Source of classification or shelving scheme Damaged status Not for loan Home library Current library Date acquired Total Checkouts Barcode Date last seen Date last checked out Price effective from
    Dewey Decimal Classification     Beaconhouse Newlands Beaconhouse Newlands 06/11/2023 1 BNL23118807 06/11/2023 06/11/2023 06/11/2023