JOM KITA KE POLITEKNIK

The Role of Religion and Spirituality in Caregiver Decision-Making about Tracheostomy for Children with Medical Complexity (Record no. 1514)

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Personal name Nageswaran, Savithri
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9 (RLIN) 1005
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Title The Role of Religion and Spirituality in Caregiver Decision-Making about Tracheostomy for Children with Medical Complexity
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Date of publication, distribution, etc. 2022.
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General note /pmc/articles/PMC7577925/
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General note /pubmed/32319863
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Summary, etc. Children with medical complexity (CMC) receive life-sustaining treatments such as tracheostomy. The objective of this paper is to explore the roles of religion and spirituality (R&S) of caregivers of children with medical complexity (CMC) in their decision to pursue tracheostomy for their children. We conducted 41 in-depth interviews of caregivers of CMC who had received tracheostomies in the prior five years. Four themes emerged: 1) Caregivers believed R&S to be powerful for their children's healing, and helped them cope with their children's illnesses; 2) Spirituality was an important factor for caregivers in the decision to pursue tracheostomy for their children; 3) Many caregivers did not discuss their spirituality with clinicians for a variety of reasons; 4) Clergy and hospital chaplains played a major supportive role overall; however, they did not play a significant role in the decision-making process. Our study shows the importance of R&S, and the roles of clergy and chaplains in pediatric tracheostomy decision-making.
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Language note en
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Topical term or geographic name as entry element Article
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Genre/form data or focus term Text
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Personal name Banks, Quincy
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9 (RLIN) 1006
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Personal name Golden, Shannon L.
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9 (RLIN) 1007
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Personal name Gower, W. Adam
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9 (RLIN) 1008
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Personal name King, Nancy M.P.
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9 (RLIN) 1009
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Note J Health Care Chaplain
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Uniform Resource Identifier <a href="http://dx.doi.org/10.1080/08854726.2020.1755812">http://dx.doi.org/10.1080/08854726.2020.1755812</a>
Public note Connect to this object online.

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